The Boy Whose Skin Fell Off (2004)
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
Year
2004
Country
GB
Language
English
Release date
25 March 2004
TMDB
7.4 (9)
CineVerse
— (0)
Ratings
0 fansNo ratings yet.
Reviews
If you liked The Boy Whose Skin Fell Off, you might also like…
91% match4 Little Girls
1997
90% matchThe Godfather Family: A Look Inside
1990
85% matchSeven Up!
1964
79% matchLouis Theroux: Twilight of the Porn Stars
2012
77% matchDirected by John Ford
1971
76% matchInterstellar: Nolan's Odyssey
2014
68% matchFuck
2006
67% matchMaking The Witcher
2020
64% matchCome See Me in the Good Light
2025
60% matchThe Class of ‘92
2013
60% matchDavid Byrne's American Utopia
2020
60% matchDavid Bowie: Five Years
2013
60% matchTrainwreck: The Real Project X
2025
60% matchDavid Blaine: Real or Magic
2013
60% matchMarvel's Behind the Mask
2021
60% matchJohn Candy: I Like Me
2025
60% matchEx Libris: The New York Public Library
2017
60% matchAnna Nicole Smith: You Don't Know Me
2023
60% matchCapital in the Twenty-First Century
2019
60% matchDrew: The Man Behind the Poster
2013